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BACK DOOR BOY IN A FRONT DOOR WORLD
OUTSIDE OF SOCIETY - THAT'S WHERE I WANT TO BE
GET PROACTIVE 
2nd-Sep-2006 09:32 pm
Pensive
After reading this, please repost it using the code provided below - and thank you in advance.


In early 1992, my friend Page insisted I listen to a tape of a band called Lenny from Athens, GA. She knew I would love this music and the singer, one Elissa Hadley, was a personal friend of hers. They were coming to play at The Loft here in downtown Columbus, about 3 hours south of Athens. I loved the music instantly and was mesmerized by Elissa's vocals. My friend David nailed her vocal style very eloquently in his estimation of the luminous, ethereal quality of her voice by stating that it "...sounds like a candle glowing in a dark room." I am hard pressed to identify any other singer who could match the softness of Elissa yet still be as strong. It isn't just the voice that is so phenominal, it's what she did with it that made her so extraordinary.

I met Elissa and her bandmates when they showed up to play the Loft for the first time, we sat together and got acquainted while drinking hot tea to calm her sore throat. She was completely charming and witty and enchanting on every human level possible, even seamlessly moving past all of that in undetectable ways into something quite otherworldly to me, a quality I don't find in many people. Elissa had a way about her that made her both tough and fragile at the same time. She had a softness and vulnerability that kept you wondering just how thick the exterior was, and you couldn't help yourself - you wanted something from her, she lingered with you long after she'd left the room. She had every reason in the world to be bitter and jaded in recent years, but that wasn't in her nature. She had this childlike sense of forgiveness, everything was always about being in a moment and getting caught up in it - but not so far that you lost yourself completely, just enough to be reminded that you're really living. It's really hard to imagine her holding a grudge. You couldn't resist the need she stoked in you to want to know her and be her friend. In the small handful of time I got to spend with her discussing music and what inspires us, she spoke with no authority or pretention whatsoever and made it clear that taking oneself too seriously made you boring.

And that voice, that amazing, enthralling way that she could sing which also seemed otherworldly and completely out of place on such a relatively small little auburn haired thing. She'd stand in front of a microphone and banter with the audience, but once she began to sing she completely commanded your attention. It was almost a religious experience hearing her perform live and eyeing the crowd of people around you, each staring back at her on center stage in a way that children do when viewing magician's tricks for the first time. Elissa's vocal talent was alchemy at it's finest, her intonation and technical abilities were nothing short of miraculous. To this day there isn't a single person I can compare her style to, it was singular and magnificent and with Page as the catalyst I got to experience it a few times in person and for thousands of hours on a single independently released cassette tape.

It isn't often you get to experience music that upon successive listenings makes you realize that you'll never be the same again having heard it. This ten song cassette tape signified that for me. I went to record stores in Athens and Atlanta and bought every copy available for friends I knew would appreciate it and mailed copies of it all over the place. Over the years I've lost touch with many friends I had then, and I've long since been without a copy of the Lenny tape. I have every single lyric and note from each individual instrument committed to memory, and always lamented the fact that it was only available on cassette. Now and then I'd try to track the music down of try and find Elissa to see what she was doing these days, knowing that in her I'd reconnect with her magic and the soundtrack for many of my joys and sorrows. I thought up until the end of last weekend that I was getting close to locating her, and then no sooner was I posting about it again did I get the email that she was gone. Her heartprint is left everywhere, even for me, having only spent time with her maybe on 4 or 5 occasions.

The timeline from when she began getting sick is astonishing and frightening:
  • November, 2005 - Elissa has a pap smear which turns up nothing out of the ordinary
  • February, 2006 - First cervical cancer diagnosis, begins 6 weeks of chemotherapy.
  • May, 2006 - Elissa is declared cancer free.
  • July, 2006 - After symptoms reappear, Elissa goes back into the hospital. Her cancer had metastasized and begun spreading to other organs.
  • August, 2006 - The cancer is declared inoperable, two days later she enters hospice.
  • August 27, 2006 - Elissa passes away at 1:30AM, only 8 days after entering hospice care.


I want everyone in the world to listen to her music (Breathlanes/Lenny/Nectar) and appreciate what a tremendous loss to all of us this is. I want Elissa's life and talent to mean as much to everyone as it did to me, and I want everyone who loves anyone to go through the resources listed below and start getting proactive with their own health and the health of others. Demand that all of the women in your life get regular OB/GYN exams to not only include pap smears but HPV tests as well. Talk to your doctors about HPV and cervical cancer, there are many types of HPV and while some put women at a higher risk for the development for future cervical cancer, the test can detemine your own level of risk. Men can carry HPV and transfer it to their female sexual partners without knowing THEY are infected as well. Also, QUIT SMOKING - women who smoke have a 50% higher chance of getting cervical cancer than women who don't smoke.


This post is made in love and honor of Elissa Hadley and the wonder and magic she brought in her short time on earth; Mr. & Mrs. Hadley and all of their family, friends, and loved ones; Monica, her husband, and their beautiful babies; Newt and his family; Page for introducing me to Elissa, Lenny, and for growing up with me; David, for everything he's becoming to me; Tom, for his thoughtfulness; Tracy, for reaching out to me; Jimmy/Arcadia, for also understanding it perfectly; Erin, for the effort to get me in touch with people I needed to talk to; the former members of Lenny and all musicians, actors, and friends who were ever graced by Elissa; and to the giant hole in the world that has been created in the wake of this horrible and tragic loss.

You are deeply loved and missed, Elissa.



Thank you for everything in life that you complimented for me. I will never be the same, and I will always feed the ghost.





Copy & paste this code to link to this post in your own journal:




Here's what will appear on your LiveJournal/blog/website:

Someone you love may be dying as you read this, much sooner than you think or are ready to deal with.
They could be silently suffering RIGHT NOW and not even know it.

It doesn't have to be that way.

DO something - make a difference - declare your love.
Don't wait until there's no choice, do it while you have one.

There is no excuse.

Celebrate Elissa's life and musical legacy. Save someone YOU love.

[click here for more]


Track blogs that link here:
Comments 
3rd-Sep-2006 01:56 am (UTC)
Thanks for this, Jude.

Many people don't realize how HPV is a silent killer. And, how prevalent its presence is in men who cross-infect their female sexual partners.

Guys who notice an occasional "bump" or "skin tag" on their penis must have it checked out by a doctor. It's much easier to treat a man than a woman who has the infection, and in guys, the infection is not painful, so it often goes overlooked.

What you're stressing here about the unknowns of life is very similar to Stephen Levine's One Year to Live, a Buddhist practice about preparing yourself for the end of your life while you can still have some input. It also allows you to prepare for the loss of those you love also. It's a very powerful spiritual process I've been working through over the last 8 or so months and I recommend it for anyone of any faith.

It's never too late to remember yours and others mortality.
3rd-Sep-2006 01:39 pm (UTC)
Thanks, C - I really appreciate it - I'll add that book to my list!
3rd-Sep-2006 01:59 am (UTC)
That is a good thing you are doing by telling her story.
3rd-Sep-2006 01:40 pm (UTC)
If only it were enough.
3rd-Sep-2006 02:13 am (UTC)
It's funny, when I was a kid I used to rag my mother to get an exam as often as possible, guilt her into it, in fact. Now that I've been without insurance for six years, I haven't had a checkup in at least that long. I guess I need to remedy that ...

It's a shame she had to die that young and so violently by her own body turning against her, basically.
3rd-Sep-2006 01:41 pm (UTC)
This is partly why I made this post, because I cannot stand the idea of the grief generated by this sort of thing when in many cases it can be prevented.
3rd-Sep-2006 02:28 am (UTC)
Sometimes a post leaves you at a loss for words and tonight is one of those rare moments. The music is just incredible from an incredible person. Y'all are in my prayers.
3rd-Sep-2006 01:42 pm (UTC)
Thank you for reading & reposting, and I'm glad you are enjoying the music. Also, hello from across the river - I'm just down the road from you in Columbus.
3rd-Sep-2006 04:00 am (UTC)
Jude,

Again, I am so sorry for your loss and the loss of the world of Elissa's talented voice and beautiful soul.

I've been preaching these same words for 16 years now since my Grandmother died in my arms 16 years ago of cancer. Over the years I lost one family member after another to cancer including my Mom in 1997.

We need more info out there and more funding. Do you realise how much could be done to save lives with Bush's war chest? More lives than that war is supposedly saving. The real terror in this world that anyone can hear is the doctor saying "you have cancer". Especially since there are so many preventative tests that can and should be done for both sexes that could save lives.

I tried to use my time, money and sewing talents to both raise funds and raise awareness about cancer, but most people do not want to get involved until it hits them or someone they love. Not including you on this, I know you have been helping out before Elissa. But even people close to me have watched as my family have struggled with this disease and it's devasting effects on our family, and did nothing to speak up until it hit them or someone they loved.

You know we went through our life savings, a second mortgage, and had to file bankrupcy this year all because of the costs of medical care. I went looking to our government for help since Larry's $30,000 a year income before taxes was not enough to live on when we were putting out $9,000+ out of pocket a year for medical expenses. We did not get help from our government despite my wring to everyone all the way to the White House, and it's not just Republicans because I wrote to John Kerry, and I got an automated reply back asking *me* for money for his campaign.

I wrote to my congressman several times and got no help yet his wife was diagnosed this summer and I can guarantee you she is getting the best care available and they aren't having to sell off everything they have and going out and begging strangers for help, so she can afford to get necessary care to survive her cancer. Yet, I doubt it will move him to vote for more money for research or medical care for people needing financial help.

We need for the government to pay for everyone to have preventive tests for cancer and for anyone who has been diagnosed with cancer. It would not only save lives but be more cost effective in the long run especially since most cancers can be treated and save lives if caught early.

Thanks taking Elissa's struggles and death from cancer as a way to voice what needs to be said. I wish more people would become moved and get involved.

Hugs, Christina
3rd-Sep-2006 01:45 pm (UTC)
THIS is part of why my blog has turned into what it has turned into, because people just don't know or choose not to listen.

I agree with you on all of your points, and socialization of healthcare would definitely be a proactive step towards saving lives and resources.

You know me, if I have no flag to wave I take off my shirt, tie it to a stick, and wave that.

I love you, honey.
3rd-Sep-2006 11:11 am (UTC)
I have several strains of HPV, including one that causes cancer, though it has not caused cancer for me fortunately. I was diagnosed because it caused symptoms. Many times, it does not.

Today, ob/gyns are routinely testing for HPV during annual pap smears. This is a good thing as they didnt' used to. Here's the bad part. If you do not have HPV, and are monogamous, then they recommend pap smears every 3 years (if you're under a certain age). If you have an HPV strain that causes cancer they recommend pap smears every 6 mos.

Here's my objection. It takes two to be monogamous, and you can only be certain about yourself. HPV is both highly contageous through sexual (specificaly gential to oral, anal or vaginal contact) and extremely common in the population. If you've had sex with anyone who's had sex, you're considered exposed.

The every three year pap smear should only apply to women who are completely celibate during that three year period. Otherwise, I see that policy promotion as causing more deaths.

I'm glad they're screening routinely for HPV, it's a necessity. But it shouldn't be used to exclude risk in any patient who's sexually active. And women need to know that if their ob/gyn doesn't routinely screen for it to ask for the screening to be done every time they have a pap smear. If thei ob/gyn doesn't believe it necessary, then they should immediately switch to a new doctor.
3rd-Sep-2006 01:47 pm (UTC)
Thank you for offering this, it's just one more stage of the kind of awareness I want brought to people's attention. I agree that the 3 year pap as a routine is very ineffective, especially in people with higher risk factors and/or exposure to HPV, there's an awful lot to fall through the cracks there.
3rd-Sep-2006 01:35 pm (UTC)
If I can add my $0.02 to the discussion of cancer, especially cervical cancer, I'd suggest reading this article.

http://www.washingtonpost.com/wp-dyn/content/article/2005/10/30/AR2005103000747.html

A vaccination is in the works but people are gearing up to legislate against it because of "moral" issues assosciated with it.

In the suggestions you have, I'd also suggest everyone, men and women, get the vaccine. Gay men need vaccination as well (HPV is also corrolated with rectal cancer)...
3rd-Sep-2006 01:49 pm (UTC)
I love you, Jason - I just do. I'd completely forgotten that I'd blogged about this very thing before, and it couldn't be more appropriate to bring up now. By all means if you know of any other links that should be added to the resources section of this post, let me know so I can make the necessary edits.

You're the best!
3rd-Sep-2006 02:37 pm (UTC)
Very well written. Thanks for sharing her story.
3rd-Sep-2006 04:44 pm (UTC)
Thank you for reading and linking!
3rd-Sep-2006 02:47 pm (UTC)
Men can carry HPV and transfer it to their female sexual partners without knowing THEY are infected as well.

According to my own HPV doctor, OVER 50% of gay men with HIV also have a strain of HPV.
3rd-Sep-2006 04:45 pm (UTC)
Excellent point, this illustrates the importance of viral infection being equal opportunity and falling over lines of gender, sexuality, and everything else.
3rd-Sep-2006 03:40 pm (UTC)
I have nothing much to add except my admiration for getting this information out there, I'm seeing it in a lot of journals. HPV is a topic that seems to make a lot of people nervous once they start discussing it and realizing how prevalent it is, but the invasive forms CAN be fatal. There needs to be a lot more education. Thanks for this.
3rd-Sep-2006 04:47 pm (UTC)
Thank you for the comment and for reposting!!
3rd-Sep-2006 04:52 pm (UTC)
Heartbreaking. :( I reposted!
5th-Sep-2006 10:34 pm (UTC)
Thanks, I really appreciate it. Download the music and listen to it often!
3rd-Sep-2006 08:26 pm (UTC)
Thanks
- for keeping us mindful that LJ can be a way to get important info communicated out there.
- for always fighting the good fight and keeping us mindful of priorities.


5th-Sep-2006 10:37 pm (UTC)
Hey - it's part of the reason I do this, it's my way of being able to live with all of this grief and do some good by helping opening eyes and minds elsewhere.

And besides, too many people are apathetic - I just can't be like that.
5th-Sep-2006 12:51 pm (UTC)
This is a beautiful tribute, Jude. I'll be checking out her music. Thank you.
5th-Sep-2006 10:38 pm (UTC)
Thanks, lovey - I know you'll love this music, it's truly amazing on a technical level what she could do vocally.
5th-Sep-2006 12:57 pm (UTC) - here via habibe
reposted. I have (had?) HPV-dysplasia, and I work in the women's health field. Thank you for this story and link, and I'm so sorry about your friend.
5th-Sep-2006 10:39 pm (UTC) - Re: here via habibe
I'm glad to know that this is having the effect I wanted, it gives me promise and hope for a better future for us all. Thanks for reading!
5th-Sep-2006 03:51 pm (UTC)
Thanks for this... I cam here by way of habibekindheart.

I am HPV positive... I found out at my first pap after becoming pregnant with my daugher, who was born on July 20. I was reluctant to have a colposcopy while pregnant so I'll be doing it if/when I have an abnormal test again (I'm waiting for my results right now).

Before the abnormal test, I had no idea that a virus could cause cancer. That sure opened my eyes. (And I thought I was a well-read person before that!)

I'm sorry for the loss of Elissa and I thank you for making people aware.
5th-Sep-2006 03:57 pm (UTC)
Oh and I'm reposting. :)
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